Before I go any further Kaityn's name is pronounced KATE-IN. A different spelling would be Katen. We just like to be different and challenging....haha. =) Kaityn Jenieva-Faith (Jenieva: pronounced Geneva- she's named after her great grandmother) and the kids chose Faith. Diya told me that they chose Faith because they had FAITH in me that I could make it through the rough pregnancy and they had FAITH in God that He would guide us through. Bless their heart! I truly have amazing kids! ♥ them!
Anyway....on with my story....
The kids came to the hospital and met Kaityn. They all (especially Diya!) just adored her! Diya got to come and meet Kaity before any of the other kids. It was special for her! =) My parents, Janice, Ketryna, and the kiddos all came to meet her. It was very nice!
Kaity and I were released to go home on June 29. It was 3 weeks to the day since I had been home! I was sure excited to get home! Of course the big deal of the day was that Baby Kaity had NO clothes small enough for her to wear home! Deep went on a hunt for preemie clothing. He hardly found anything at all! He went to at least 5 stores and finally at a Carters store they had a small section with preemie clothing. He bought everything they had for a girl! So he got her clothes just before we left the hospital!
Kaity was very fussy at home. I have never had a newborn be that fussy...so I wasn't sure what was going on. While we were in the hospital she had a couple of gaggy/choking episodes. The nurses assured me it was due to "fuzz balls" from the amniotic fluid. When this happened her body stiffened up and she turned red. She wasn't able to get a good breath in. It scared me terribly. The nurses checked her each time, and said it was "normal." So back to her first week home. She was fussy. We had a few weight checks. Before we left the hospital she was 4lbs 11 oz. She dropped down to 4 lbs 5 oz. We had a weight check 2 days late later she had gained 1 oz (this was Thursday) up to 4 lbs 6 oz.
Kaityn's first week home was a HOT ONE!!! We ended up taking a "stay-cation" to a hotel near here. Our house was 90 degrees inside...way too hot! So we planned to go stay in this hotel for the weekend...Fri-Sun.
7/7/12: Saturday morning Kaity woke up early. Very early in the morning she started having a seizure/choking/not breathing episode. She had about 5 episodes right in a row. She would go about 30-45 seconds without catching a breath. Her whole body would stiffen up, eyes would get huge, she turned BRIGHT red all over her body, her lips turned blue, and once she could get a breath she would let out the most terrified/terrifying scream. It was so incredibly heart breaking to see our baby like this. I woke Deep up because I was so scared. He talked me down....I was completely ready to call 911. Had we of been home I probably would have. So fast forward a few hours...I noticed Kaity had a "barky" cough. So I called her pediatrician's after hours phone number. Her pediatrician told us to take the baby to the hospital ER. At the hotel Deep had taken the kids downstairs to swim. So I went down and explained to him that we needed to go to the ER. They all got out of the pool, got ready, and we headed home then toward the hospital. Thankfully we had Janice and Ketryna here still. They stayed with the kids so we could both take Kaity to the hospital.
We arrived at the hospital in the evening. It was before dinner time. The triage nurse checked Kaityn's vitals. Immediately we were walked to a trauma room. Her heart rate was dropping very low...like 50s when it should have been well over 100-120. Her O2 was low, and her respiration count was decreased. We got followed into a trauma room with a peds crash cart! The room filled up with people...quickly! They got my itty bitty baby hooked up to lots of monitors and an IV. A neonatologist came to check her out. They did lots of tests. The decision was made to transport her to Children's Hospital of Michigan AKA Detroit Children's Hospital. She HAD to be transported via PANDA One. (Pediatric and Neonatal Dedicated Ambulance). So we waited on PANDA One to get to Huron Valley to transport her. They arrived between 8 & 8:30. After taking all of her info, getting her loaded and such...we were on the road to transport her at 9 PM. We arrived at CHM at 10 PM. We were taken into the ER. The first thing I remember is being bombarded by the ER staff. I remember a specific gal asking us..."Do you bed share? Where does she sleep? Was your breast covering her mouth/nose when this happened? Was her face in a pillow or blanket?"etc. The questions seemed to never end, and while I realize they are standard questions to ask of this type of situation...it was VERY overwhelming at that moment. I was trying to get in my child's ER room to be with her when they unloaded her from the incubator (that's what they transported in for the ambulance ride) as she was screaming, and this woman was blocking me from entering the room. I started getting quite angry with the woman, and it was visible on my face and in the way I spoke to the lady. FINALLY I think she sensed my anger and let me get to my child. Kaity had several tests done...from bloodwork, urine analysis, etc. The Dr. came in and spoke with us and informed us that she needed a spinal tap. I nearly broke down. A spinal tap on a 10 day old baby...this was the same procedure that left me nearly lifeless a few months earlier. I had to leave the room when this procedure was done. I couldn't handle my sweet little baby going through that. =( Deep stayed with her. He text me when they were done, and I immediately went in to be with my girl. The decision was made to move her to NICU. We got no real answers as to what was going on in the ER.
I will write our NICU story in the next post....stay tuned for part 3!
***Again written over several days and not yet proof read!***
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